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Genetic and Rare Diseases Information Center
Did you know there are over 10,000 rare diseases? In fact, rare diseases are estimated to affect more than 30 million people in the United States. Each disease may be rare individually, but people with rare diseases often face similar challenges. These challenges may include accessing information, getting a diagnosis, and finding resources.
Source: https://rarediseases.info.nih.gov/
What Is the NORD Rare Disease Database?
With more than 1,200 rare disorders, you can explore rare disease reports that include information on symptoms, causes, treatments, clinical trials, and sources of help such as patient advocacy organizations. Each report has a list of references, such as textbooks, articles, and government agency reports.
We are a Non-Profit Organization dedicated to raise provider awareness, provide patient support, and advocate for better resources and research for those living with rare conditions. Our organization is driven by a shared mission to raise awareness, provide support, and advocate for better resources and research for those living with rare conditions.
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Rare Diseases
Contact Us
For general questions about our organization, our mission, or how you can get involved, please email us. We endeavor to respond to all inquiries
- info@rarediseaseadvocates.org
- 3950 Eagle Rock BLVD Los Angeles, CA 90065 P.O. BOX 65731