About Us
Home / About Us
About Us
We are a Non-Profit Organization dedicated to raise provider awareness, provide patient support, and advocate for better resources and research for those living with rare conditions. Our organization is driven by a shared mission to raise awareness, provide support, and advocate for better resources and research for those living with rare conditions.
Our Mission:
At Rare Disease Advocates Organization, our mission is to empower and uplift individuals impacted by rare diseases. We strive to:
- Raise Awareness: We work tirelessly to increase public understanding and recognition of rare diseases, shedding light on the challenges faced by patients and their families.
- Provide Support: We offer a compassionate and inclusive space where individuals can find support, resources, and community connections to navigate their unique journeys.
- Advocate for Change: We advocate at local, national, and international levels for policies, funding, and research initiatives that prioritize the needs of those affected by rare diseases.
Our Values:
- Compassion: We approach our work with empathy, understanding, and sensitivity to the diverse experiences of individuals living with rare diseases.
- Collaboration: We believe in the power of collaboration and partnership to drive meaningful change and improve outcomes for the rare disease community.
- Empowerment: We empower individuals to become active participants in their healthcare journeys, providing them with the tools and knowledge they need to advocate for themselves and others.
- Innovation: We embrace innovation and creativity in our approach to addressing the complex challenges faced by the rare disease community, seeking out new solutions and opportunities for progress.
Our Commitment:
Rare Disease Advocates Organization is committed to making a difference in the lives of those affected by rare diseases. We pledge to:
- Listen: We listen to the needs and concerns of individuals and families affected by rare diseases, ensuring that their voices are heard and respected.
Educate: We provide accurate and up-to-date information about rare diseases, treatments, and support services, empowering individuals to make informed decisions about their health and well-being.
Advocate: We advocate tirelessly for policies and initiatives that promote access to quality healthcare, research funding, and support services for the rare disease community.
Support: We offer a range of support programs, services, and events designed to meet the unique needs of individuals living with rare diseases and their families.
Your Financial Contribution Can Help Us Fund Critical Programs & Initiatives
We are a Non-Profit Organization dedicated to raise provider awareness, provide patient support, and advocate for better resources and research for those living with rare conditions. Our organization is driven by a shared mission to raise awareness, provide support, and advocate for better resources and research for those living with rare conditions.
Quick Links
Rare Diseases
Contact Us
For general questions about our organization, our mission, or how you can get involved, please email us. We endeavor to respond to all inquiries
- info@rarediseaseadvocates.org
- 3950 Eagle Rock BLVD Los Angeles, CA 90065 P.O. BOX 65731