EVENTS
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Upcoming Events
June 16, 2025
6:00PM - 8:30PM
Exploring the Rarity
MF, AML, BPDCN
Enjoy expert-led talks, dinner, and meaningful networking with clinicians, researchers, and advocates.
July 08, 2025
6:00PM - 8:30PM
Cellular Frontiers
Innovations in Therapy: NHL, ALL, MM
Enjoy expert-led talks, dinner, and meaningful networking with clinicians, researchers, and advocates.
July 24, 2025
6:00PM - 8:30PM
aHUS Symposium
.
Scientific symposium dinner program-similar to an advisory board- with a focus on scientific change and networking. You will be sent a calendar hold if you are approved for attendance
July 24, 2025
6:00PM - 8:30PM
aHUS Symposium
.
Scientific symposium dinner program-similar to an advisory board- with a focus on scientific change and networking. You will be sent a calendar hold if you are approved for attendance
Past Events
June 03, 2025
6:00PM - 8:30PM
Innovations in Therapy: NHL, ALL, and MM
May 22, 2025
6:00PM - 8:30PM
Myelofibrosis, AML, BPDCN
May 21, 2025
6:00PM - 8:30PM
Myelofibrosis, AML, BPDCN
May 7, 2025
6:00PM - 8:30PM
NHL, ALL, MCL, Sickle Cell
April 23, 2025
6:00PM - 8:30PM
PNH and MDS
April 1, 2025
6:00PM - 8:30PM
Myelofibrosis, AML, BPDCN
Fabruary 12, 2025
6:00PM - 8:30PM
PNH & MDS
Fabruary 26, 2025
6:00PM - 8:30PM
Myelofibrosis, AML, BPDCN
January 28, 2025
6:00PM - 8:30PM
Paroxysmal Nocturnal Hemoglobinuria & Myelodysplastic Syndrome
January 15, 2025
6:00PM - 8:30PM
Myelofibrosis, AML & BPDCN
December 19, 2024
6:00PM - 8:30PM
Myelofibrosis, AML & BPDCN
August 20, 2024
6:00PM - 8:30PM
PNH & MDS
As a Nonprofit organization, we are deeply committed to raising awareness, providing patient support, and advocating for better resources and research for individuals living with rare diseases.
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For general questions about our organization, our mission, or how you can get involved, please email us. We endeavor to respond to all inquiries