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Become a valued partner in the fight against rare diseases by joining the Advocates Circle, our exclusive corporate sponsorship program. As a member, your organization will be prominently recognized as a trusted partner dedicated to making rare diseases known. Together, we can educate providers, support patients, and create a lasting impact in the rare disease community. Join today and stand with us as an advocate for change!
We are a Non-Profit Organization dedicated to raise provider awareness, provide patient support, and advocate for better resources and research for those living with rare conditions. Our organization is driven by a shared mission to raise awareness, provide support, and advocate for better resources and research for those living with rare conditions.
For general questions about our organization, our mission, or how you can get involved, please email us. We endeavor to respond to all inquiries