Helping Individuals Navigate Difficult Diagnoses
Creating Change Through Education, Advocacy, Support, and Innovation
Transforming Lives Through Advocacy & Support
At Rare Disease Advocates, we support individuals and families affected by overlooked or underserved disease states. Whether you’re newly diagnosed or have been navigating your condition for years, our nonprofit is here to help you feel seen, heard, and supported.
We educate patients and caregivers, advocate for healthcare equity, drive innovation in treatment awareness, and connect individuals to expert-led resources and community care. Our mission is rooted in compassion- and powered by a belief that no one should face a challenging health journey alone.
Learn About Disease States and Conditions
Explore symptoms, diagnosis insights, treatment options, and real-life stories from patients and families across a wide range of disease states.
Resource and Support for Patients & Families
Be part of our supportive community of individuals and families facing rare diseases. Discover valuable resources, expert insights, and a path forward with confidence.
Find Experts and Advocacy Organizations
Explore curated resources to connect with experienced specialists and support organizations that focus on your specific rare disease.
Upcoming Events Near You
May 21, 2025
6:00PM - 8:30PM
Exploring the Rarity
Myelofibrosis, AML, BPDCN
Enjoy expert-led talks, dinner, and meaningful networking with clinicians, researchers, and advocates.
May 22, 2025
6:00PM - 8:30PM
Exploring the Rarity
Myelofibrosis, AML, BPDCN
Enjoy expert-led talks, dinner, and meaningful networking with clinicians, researchers, and advocates.
June 03, 2025
6:00PM - 8:30PM
Cellular Frontiers
Innovations in Therapy: NHL, ALL, and MM
Enjoy expert-led talks, dinner, and meaningful networking with clinicians, researchers, and advocates.
June 16, 2025
6:00PM - 8:30PM
Exploring the Rarity
MF, AML, BPDCN
Enjoy expert-led talks, dinner, and meaningful networking with clinicians, researchers, and advocates.
Your Financial Contribution Can Help Us Fund Critical Programs & Initiatives
No one should face the unimaginable pain and isolation of a rare disease alone.
Thank you for your interest in reaching out to us at Rare Disease Advocates. Your feedback and inquiries are valuable to us as we strive to support individuals and families affected by rare diseases.
General Inquiries:
For general questions about our organization, our mission, or how you can get involved, please email us at info@rarediseaseadvocates.org. We endeavor to respond to all inquiries
Partnerships and Collaborations:
We welcome opportunities to collaborate with other organizations, institutions, and stakeholders in the rare disease community. Please direct partnership inquiries to info@rarediseaseadvocates.org.
Connect With Us on Social Media:
Stay updated on our latest initiatives, events, and news by following us on our social media platforms. Join our community and share your stories and experiences.
Contact us for Rare Disease Support and Information
As a Nonprofit organization, we are deeply committed to raising awareness, providing patient support, and advocating for better resources and research for individuals living with rare diseases.
Quick Links
Rare Diseases
Contact Us
For general inquiries or to get involved with RDA’s advocacy, support programs, or education events, please contact us or email info@rarediseaseadvocates.org