Supporting Patients with Rare Diseases
Educating | Advocating | Innovating | Supporting
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Welcome to Rare Disease Advocates
No one should face the unimaginable pain and isolation of a rare disease alone. At the heart of our mission is an unwavering commitment to stand by those affected, to be their advocate, and to ensure their journey is met with compassion and support. Together, we strive to illuminate the path forward, making each step a little brighter and every challenge a shared endeavor. Let us unite in hope and determination, knowing that with each voice raised and every hand extended, we are transforming lives and creating a future where no one is left to suffer in silence.
EXPLORE RARE CONDITIONS
Explore information about different rare diseases, symptoms, treatments, and impact on individuals and families
EMPOWERING PATIENTS
Join our community of rare disease warriors. Access support, resources, and hope for your journey today!
CONNECT WITH EXPERTS
Access resources to find healthcare professionals and support organizations specializing in specific rare diseases
Upcoming Events
January 15, 2025
6:00PM - 8:30PM
Exploring the Rarity
Myelofibrosis, AML & BPDCN
Free attendance & food for all healthcare providers
January 28, 2025
6:00PM - 8:30PM
Paroxysmal Nocturnal Hemoglobinuria & Myelodysplastic Syndrome
Free attendance & food for all healthcare providers
Fabruary 12, 2025
6:00PM - 8:30PM
Exploring the Rarity
PNH & MDS
Free attendance & food for all healthcare providers
Your Financial Contribution Can Help Us Fund Critical Programs & Initiatives
No one should face the unimaginable pain and isolation of a rare disease alone.
Thank you for your interest in reaching out to us at Rare Disease Advocates. Your feedback and inquiries are valuable to us as we strive to support individuals and families affected by rare diseases.
General Inquiries:
For general questions about our organization, our mission, or how you can get involved, please email us at info@rarediseaseadvocates.org. We endeavor to respond to all inquiries
Partnerships and Collaborations:
We welcome opportunities to collaborate with other organizations, institutions, and stakeholders in the rare disease community. Please direct partnership inquiries to info@rarediseaseadvocates.org.
Connect With Us on Social Media:
Stay updated on our latest initiatives, events, and news by following us on our social media platforms. Join our community and share your stories and experiences.
Contact us for Rare Disease Support and Information
We are a Non-Profit Organization dedicated to raise provider awareness, provide patient support, and advocate for better resources and research for those living with rare conditions. Our organization is driven by a shared mission to raise awareness, provide support, and advocate for better resources and research for those living with rare conditions.
Quick Links
Rare Diseases
Contact Us
For general questions about our organization, our mission, or how you can get involved, please email us. We endeavor to respond to all inquiries
- info@rarediseaseadvocates.org
- 3950 Eagle Rock BLVD Los Angeles, CA 90065 P.O. BOX 65731
